28/01/2025

Launch of Patient Panels – First meeting in Dublin

In iCARE4CVD, Patient Panels are groups of individuals living with CVD who provide direct input into the research and development activities of the project. On January, 28 we kicked-off the first patient panel meeting in Dublin!

What are Patient Panels?

In iCARE4CVD, Patient Panels are groups of individuals living with CVD who provide direct input into the research and development activities of the project. By integrating patient perspectives, the project aims to improve treatment strategies, optimise healthcare pathways, and ensure that outcomes are meaningful to those directly affected.

 

iCARE4CVD aims to establish Patient Panels in four countries, each led by a key research institution:

  • Belgium – Thomas More Kempen vzw
  • Germany – University Hospital Aachen, RWTH Aachen
  • Ireland – University College Dublin
  • United Kingdom – Queen’s University Belfast

 

These panels will actively shape research and innovations within iCARE4CVD, particularly by:

 

✔ Understanding Patient-Reported Outcomes & Experiences
Helping to identify the most relevant aspects to evaluate CVD treatment effectiveness and satisfaction from a patient perspective.

✔ Developing a Motivation Model
Providing feedback on strategies to support therapy adherence and the sustainable use of digital health technologies.

✔ Supporting the Development of new care pathways
Contributing real-world experiences to refine potentially new patient journeys for better diagnosis, risk prediction, and treatment.

✔ Evaluating AI-Based Decision Tools
Participating in usability testing of iCARE4CVD’s AI-driven solutions that aim to be user-friendly, effective, and beneficial for both patients and medical professionals.

 

Launch of Patient Panel in Dublin

The iCARE4CVD Patient Panels officially launched with their first in-person meeting on January 28, organised by the University College Dublin team. This event marks the beginning of a 3.5-year collaboration, with the German Foundation for the Chronically Ill (FCI) coordinating the involvement of the four Patient Panels across Belgium, Germany, Ireland, and the UK.

During this first session, the Irish Patient Panel provided valuable insights through questionnaires, offering perspectives on key topics such as:

Barriers to long-term health app usage
Challenges with treatment adherence
Preferences for data entry and sharing
Opinions on wearable digital health technologies
Preferred ways of receiving health information

 

By incorporating patient perspectives into research, iCARE4CVD will ensure that the tools, treatment models, and digital health solutions developed within the project are not only clinically effective, but also practical, accessible, and relevant for those living with cardiovascular disease.

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